Experts urge caregivers to seek help. However, the barriers to accepting support are greater for caregiver spouses than for adult children serving in the same role. Kathryn Betts Adams, professor of social work at Case Western Reserve University, studied the spouses of husbands and wives with dementia and found that they need encouragement to take care of themselves. Adams said, “Caregivers have a long exposure to stresses and losses from the dementia and fatigue that comes from caring for their spouses, so they experience fewer positive emotions. Some may have feelings of guilt about participating in activities with friends or in the community when their loved ones are no longer able to do so.”
Spouse caregivers are also less likely to discuss the problems they are experiencing. The traditional reticence to violate the privacy of the marriage may cause them to bottle up their feelings of stress, frustration and grief. This in turn affects their health and strains their marriage all the more. Support groups, therapists and geriatric care managers can provide a safe outlet.
Professionals may also help with tough decisions about the best living situation for the couple. Some couples choose to move together to an assisted living or continuing care community, where the disabled spouse can receive assistance. When the ill spouse’s needs are medically complex, nursing home care may be the best choice. Nursing home social workers offer counseling on ways the couple can stay connected.
Source: Caringnews.com
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